#IBDSuperHeroes media on instagram
@ibdsuperheroes
  • 44 likes
  • 3 comments

@Regran_ed from @lisakateostomate: Today’s #ostomyfashionfriday entry is sent into me by the stunning @chloemeade93. Chloe has recently just become an ostomate and can I just say I think she’s rocking this jumpsuit and looking gorgeous as ever. If I didn’t know Chloe personally I wouldn’t have known she had a bag. You can wear what ever you like and feel comfy in when you’ve an ostomy, as you can see Chloe looks great. So proud of you and thank you for sharing your photo😘😘jumpsuit is from @newlook loving the print as it’s so on trend right now. Link below if you want to buy one too. https://www.newlook.com/uk/womens/clothing/playsuits-jumpsuits/petite-brown-leopard-print-wrap-culotte-jumpsuit/p/599192429?comp=Browse #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #aeriereal #bodyconfidence #loveyourself

Anika media on instagram
@anilili
  • 71 likes
  • 9 comments

R e a l i t y . Es is Montag Mittag und ich lieg mit der Katze kuschelnd auf dem Sofa und schau Serien. 🐾🐱🖥 Während so viele auf Instagram und Co abkotzen, weil‘s wieder Montag is.... und ja, das klingt vielleicht erstmal toll dass ich daheim bin und rumchillen kann. Aber das is es nich! Ich würd alles drum geben um mit jedem einzelnen der über den Montag und den Job abkotzt zu tauschen. ☝🏼 Denn das würde bedeuten ich hätte einen Job und vor allem: ich wär gesund genug und fähig zu arbeiten. Bin ich aber nich. Und glaubt mir das kotzt mich so viel mehr an als euch jede Woche der Montag. Und es zieht mich schon so lange so sehr runter, denn das is wirklich ein richtig schlimmes Gefühl arbeitslos zu sein und sich somit asozial zu fühlen. ☹️😔 Und wenn mir dann jemand sagt, ich hab Glück und kann froh sein und hab’s doch gut mit dem ganzen Krankenzeug „weil ich den ganzen Tag machen kann was ich will und mein Leben chillen kann“... seriously???? Nein, ich hab’s deshalb nicht gut. Nein, es is nich toll. Und nein, ich kann nich tun was ich will. Ich bin wegen Krankheit und Schmerzen im ganzen Körper ans Haus gefesselt und wenn ich’s Haus verlasse dann is es zu 95% wegen Arztbesuchen. Und auch wegen der ganzen Medikamente die hochpotente Betäubungsmittel sind, kann ich daheim kaum was tun was mir Spaß macht und mobil bin ich auch nich denn Autofahren is natürlich tabu. 💊🚽💉 Also lieg ich hier auf dem Sofa, trink Tee und versuche die Tage so gut es geht rum zu bekommen. Solche Kommentare sind ehrlich gesagt ziemlich unverschämt, unnötig und verletzend. 👊🏼🤫😢(und das Stinkefingeremoji verkneif ich mir jetzt mal lieber) Mi mi mi Ende ◾️ . . . . . . . . #cat #cuddle #cats #catlove #catlover #catlady #colitisulcerosa #colitis #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisawareness #cu #uc #mc #ibd #ced #morbuschron #autoimmunedisease #autoimmuneillness #stoma #ileostomyawareness #ileostomy #ileostomylife #ileostomyawareness #illness #chronicallyill #chronicillness #invisibleillness #invisibleillnessawareness

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 50 likes
  • 2 comments

📍Santorini - Greece 🇬🇷 ———————————————— It’s feeling so much colder getting up for work in the morning that I just want to remember how nice and warm it was whilst walking through the narrow streets whilst in Santorini. ———————————————— Santorini was such a place of beauty, photographs taken looked amazing, whether taken on my Olympus Pen 8, or on my iPhone. (This image was on my Olympus Camera 📸) ———————————————— I still cannot believe that I actually wore a bikini whilst in Santorini, it was something I vowed never to do. I don’t think I would have ever done this if I didn’t have such amazing support from my fiancé. ———————————————— #santorini #seaviews #lovesantorini #supportandlove #travellingileostomy #myileostomyworld #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #womenwhoexplore #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated #lookbeyondtheimperfections #bestofsantorini

@crohnieandthecats
  • 18 likes
  • 1 comments

Who else always feels like a pin cushion?!?! #crohnslife Just a typical afternoon for Jordan lol CT scan to find out what the heck is going on with my shitty bowels this time 💩🙄👩‍⚕️Wish me luck it doesn’t mean more surgery 🤞🤞 #ctscan #hospital #hospitalappointment #surgeon #adhesions #scartissue #wounds #woundedwarrior #healingwounds #scar #surgery #surgeryrecovery #surgerylife #longroadtorecovery #uglyscar #crohnswarrior #crohnsdisease #ibd #ibdawareness #boweldisease #ileostomy #ileostomyawareness #stoma #fistula

Lisa-Kate media on instagram
@lisakateostomate
  • 52 likes
  • 7 comments

Im up bright and early for my Hospital appointment this morning to see my colorectal team. I’ve not seen them since the beginning of the year, so kind of anxious to hear what they say. #ootd is a black dress with pink flowers, I love how it flares out at the bottom so it’s not stuck to my waist near my bag. It’s really old stock from @primark, I’ve teamed it with tan tights and black ankle boots from @primark. I hope you all have a good Monday😊 #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 48 likes
  • 0 comments

📍Rotterdam - Netherlands 🇳🇱 ———————————————— This has to be one place from this year that is going to stay in my memories for a lifetime. To be so lucky to visit so many incredible places in one year, to qualify as a snowboard instructor. But the best thing to happen this year, for my amazing boyfriend to ask me to marry him whilst on deck of a converted boat, after an incredible Chinese meal, then a walk through the harbour, onto the deck, to a proposal (which all my family and friends knew was coming) it did take me a while to say yes as I was crying. ———————————————— After my surgery I never thought anyone would love me, as I was struggling to love myself. Sometime this is still a struggle every single day for me, but surprisingly posting and talking about it does make it all seem more manageable than I ever thought. ———————————————— Obviously some days are harder than others, but I have to remember that without Illy I wouldn’t be here at all, never mind living my best life. So I have to be thankful daily. ———————————————— #loverotterdam #rotterdamoldport #rotterdambyday #engagement #travellingileostomy #myileostomyworld #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #womenwhoexplore #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated #lookbeyondtheimperfections

MyCrohnsDiary media on instagram
@my_crohns_diary
  • 35 likes
  • 0 comments

Yum yum yum 😋 apple turnover with fresh cream. Its getting colder and I can never stop eating when I'm cold, ffs. #crohnsawareness #crohnsdisease #crohnsdiet #inflammatoryboweldisease #ileostomydiet #ileostomy #ileostomyawareness #whatostomateseat #ostomybag #ostomydiet #whatieat

@my_crohns_diary
  • 33 likes
  • 0 comments

Had the loveliest day at the Christmas fair in the cathedral yesterday, was so pretty. And to think I've lived here all my life and I've never been in there before, and what better way to explore it than a Christmas craft fair. Amazing stalls and food. #crohnsawareness #crohnsdisease #ileostomyawareness #ileostomylife #elycathedralchristmasmarket #elycathedral #christmasfair

Anika media on instagram
@anilili
  • 99 likes
  • 6 comments

L i g h t s . CU Update: Gestern war ich mal wieder im RBK 🏥, eigentlich um nen Termin in der Psychosomatik wahrzunehmen. Allerdings bin ich, nachdem ich meine körperliche Verfassung geschildert habe, direkt im Anschluss in der Notaufnahme gelandet 🚨 Ich durfte aber zum Glück wieder nach Hause gehen und musste nich dort bleiben! Dort zu warten würde mir wirklich den aller letzten Nerv rauben! Wobei ich dort die Schmerzmittel intravenös und nich oral bekommen würde, denn das schlägt besser an. Und was würde ich alles dafür geben, dass die endlich nachlassen... Jedenfalls wurde meine OP dann auf den 28.11. verschoben. Mein Körper dreht gerade einfach durch... Ich würde die Zeit bis dahin am liebsten einfach verschlafen 😴 Aber leider is auch Schlaf gerade nur ein Wunsch 🤷🏽‍♀️ Aber, um darin das Positive zu sehn: 1.) Länger auf die OP warten - mehr Zeit für gutes Essen. Das muss ich mir vorher einfach gönnen. Sachen die mir nich wirklich schmecken (Zwieback 🍞, Suppe 🍜 , 🍞, 🍜, 🍜, 🍞, ...) würde ich nur des Hungers wegen gerade gar nich essen. Und mehr Essen, desto weniger Fresubin 💪🏼 2.) Weniger Schlaf - noch mehr Zeit zI essen 🍟🥑🥘🍕🥗🌮🍣🌯🥥🍚🥦🥙🍤🍊🥞🥟🥔🥐🧀🥕🌰🥜🍿🍛🍩🍝🍆 In diesem Sinne: ich geh jetzt mal kochen (wie gesagt, ich hab gerade eh keinen Rhythmus...). My kind of Saturday night 🙄😒. . . . . . . . . . [📸Credit: @normanprintz ] . #saturday #mykindofsaturdaynight #mykindofsaturday #colitisulcerosa #colitis #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisawareness #cu #uc #mc #ibd #ced #morbuschron #autoimmunedisease #autoimmuneillness #autoimmunewarrior #stoma #ileostomyawareness #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #illness #chronicallyill #chronicillness #invisibleillness #invisibleillnessawareness #invisibleillnesses

Lisa-Kate media on instagram
@lisakateostomate
  • 63 likes
  • 19 comments

Left photo is a few months ago and the Photo on the right is me today with the dreaded pred moon face. I know it may not look like much to some, but I notice the change in my face. I’ve been on them 5 weeks now and I’ve 3 weeks left before I finish them. I hate them so much, my face has got so round, my skin has broke out yet again, heart is racing and my temperate is up and down like I’m sitting on a fire. I know I was put on them to help me, but I hate looking in the mirror and seeing this round face staring back at me. I know I won’t be on them much longer and my face will slim back down, But I can’t help feel down about it. I know I’m not the only one who’s been on the dreaded pred and felt this way on them. They do play with your emotions too which doesn’t help. My partner told me I still look beautiful to him and always will and that I won’t be on them forever. So lucky to have him and hearing that is just what I need when I feel down. I need to learn that this moon face is only temporary and that I’m doing a lot better than I was two months ago. #prednisone #moonface #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself

MyCrohnsDiary media on instagram
@my_crohns_diary
  • 35 likes
  • 1 comments

Sometimes you just crave a takeaway, and that's okay. While I can eat what I want without being in pain afterwards I'm making the most out of it. So when I fancy something, I have it. No wonder I've out so much weight on 🤦 but I know me being well isn't going to last forever. #crohnsdisease #crohnsdiet #crohnsawareness #inflammatoryboweldisease #ileostomybag #ileostomydiet #ileostomyawareness #ostomybag #ostomydiet #whatostomateseat #whatieat

MyCrohnsDiary media on instagram
@my_crohns_diary
  • 35 likes
  • 0 comments

Duo chocolate spread for breakfast, both milk and white chocolate. Who else loves chocolate spread? #crohnsdisease #crohnsdiet #inflammatoryboweldisease #ileostomybag #ileostomydiet #ileostomyawareness #whatostomateseat #whatieat #breakfast

A Fashionista And Her Stoma media on instagram
@shit_happens313
  • 82 likes
  • 5 comments

It’s Friyaay so you know what that means...it’s time to dance! Sir and I are from Chicago and coming up this was like the Chicago party song! I looked better doing it when I was in high school now I need Bengay for my knees! #ostomy #ostomylife #ostomybag #ostomyfashion #ostomyawareness #ostomyblogger #ostomywarrior #ostomyproblems #ostomystyle #ostomycare #ostomygirl #ostomyadvocate #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #ileostomyawareness #ileostomyblogger #live #life #grateful #shithappens #sirpoopalot #friyay #chicago #jukeslide #40s

Veronica.V media on instagram
@vees.ileostomy
  • 151 likes
  • 12 comments

Happy Friday guys! (And yes I’m in the same pjs from the last 2days. Don’t judge.🤣) • ⭐️Fun Facts Friday⭐️ • 1️⃣ Growing up I loved Super Mario World!👾🎮-So my all time favorite game to play was Super Mario World and honestly any Nintendo game!! That was my ishhh!🙌🏽 • 2️⃣ I love Harry Potter!🔮-I’m obsessed with the movies and I could honestly watch them over and over again. • 3️⃣ I’ve never read a Harry Potter book.📚-So following along with #2 I’ve honestly never read any of the Harry Potter books..😳😂 plz don’t come for me lol • 4️⃣ I really want to get a Nintendo 3D Ds.🎮-This is very random but I really want to get one!! I love Nintendo.🤣(sorry this one is random) • 5️⃣ They took my NG tube out!🎉-Okay this is another random one but earlier today they gave us the okay to take the NG tube out. Not much had changed but they decided to take it out. • I hope you guys enjoyed these fun facts. I’m sorry some of these are boring. I just feel like crap and can’t think of much to tell you guys. But please tell me a fact about you.❤️ ••• #loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie

Alex_UCF media on instagram
@alex_ulcerativecolitis_fighter
  • 129 likes
  • 5 comments

As an ostomate you cannot beat high waisted jeans! I wore this for my 1 year review at the hospital. . I met the surgeon this week to discuss what’s happening next. And the plan is this.. 😊 Carry on doing exactly what I am doing. Living my life. Bag and all. 💪 Fingers crossed my body all works as it should and can think about adding to the family next year. 🙌 Then, and only then will I think about giving the J pouch a go! And I’m happy with that plan. 😍 Why change my life when it’s as good as it’s ever been. . . . #ileostomyawareness #ostomylife #ibdawareness #positivevibes #ibd #ostomy #stoma #stomabag #ibdwarrior #ibdfighter #positivevibes #bodyconfident #bodyconfidence #inflammatoryboweldisease #colitis #ulcerativecolitis #nocolonstillrollin #ileostomy #stomalife #jpouch #surgery #recovery #health

Lisa-Kate media on instagram
@lisakateostomate
  • 42 likes
  • 0 comments

Today’s #ostomyfashionfriday has been sent into me by the lovely @adventuresofmummumandjake. This her 2 year old son Jake, who is also an ostomate. Both Jake and his Mum share a condition called #hirschsprungsdisease and her page is to spread awareness also, so why not give her a follow! He’s spent most of his life in hospital but is the best he’s ever been right now. Thank you so much for sending me this photo he’s a credit to you and so cute. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 48 likes
  • 3 comments

📍La Tania - France 🇫🇷 ———————————————— When no filter is even need for a photograph that has only been taken on an iPhone which at the time didn’t work well in the cold so I had to sometimes keep it in my pants to keep it warm. ———————————————— I love the scenery from a ski lift, the perfectly white snow below, with a few tracks running through them. ———————————————— I cannot wait to be back on the snow, but so grateful for everyone I have around me at home, family and friends, who I won’t get to see whilst I’m away for so long. One thing about social media that I am glad about, FaceTimes whilst I’m away to share my fun. ———————————————— #chairliftselfie #snowboardinggirl #mountainview #mountainsarecalling #girswhoexplore #travellingileostomy #myileostomyworld #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #womenwhoexplore #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated

@lisakateostomate
  • 39 likes
  • 7 comments

I’ve ran out of photos for my #ostomyfashionfriday entries, so any ostomate male or female want to send me photos of their outfit of the day feel free to DM me and ill feature it on my page here every Friday. I’ve had a great response over the last few months and I’d love to have more of you take part if you’d like to. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 53 likes
  • 2 comments

📍 Sofia - Bulgaria 🇧🇬 ———————————————— Whilst we were in Sofia, every morning we had to walk through an area with a water fountain, in front of what used to be the thermal spa. And every morning there was a market. The only thing for sale here was honey 🍯 and in as many different varieties you could imagine. ———————————————— Honeycomb, honey in jars, honey made into candles, but only honey. But when the light reflected off the jars in the sunshine, the colours were incredible. ———————————————— #herbalhoney #honeycomb #honeystash #honeyhoney #sofiabulgaria #travellingileostomy #myileostomyworld #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated

Veronica.V media on instagram
@vees.ileostomy
  • 211 likes
  • 13 comments

NPO life-hack.🙌🏽 • So being NPO (nothing by mouth) honestly sucks! You can’t drink or eat anything. You mouth and throat gets super dry and if you had a NG tube like me, you have to become a mouth breather, because it’s hard to breathe through your nose. • Anyway I highly suggest your ask for these “Oral Swabette” with a cup of ice water. It honestly helps a lot and keep your mouth from getting super dry. • I know this post is kinda silly but I thought I would share this hack with you guys because I’m currently NPO right now. Waiting to do my second CT.😩 ••• #loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie

Lisa-Kate media on instagram
@lisakateostomate
  • 54 likes
  • 3 comments

7 years ago vs today. Looking back then to how I am now is strange, I was younger for a start😂, I was single, I was working and had no stoma. Now I’m in a relationship, I’m older lol, I’ve my stoma and happy for it, but not working, and that’s fine, I will do things in my own time and when my body is able to. Right now I’ve to listen to it and take care of myself. As the saying goes your health is your wealth. life has had it’s ups and downs, good and bad days, days where I thought I wouldn’t make it through as I was so tired and drained from things both mentally and physically. But I think all of this has made me the woman I am today, I’m a lot stronger, confident, positive and happier than I was. Life has got better for me despite all that’s happened and I can’t wait to see what the next 7 years has in store. #throwbackthursday #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself

@letsgoherethereandanywhere
  • 36 likes
  • 2 comments

📍La Tania - France 🇫🇷 ———————————————— Whilst I am heading back to La Tania in a few weeks, I can’t help but look back to 2016. Does this look like a person who had major life saving surgery 2 months and 7 days before the 1st picture was taken? Does it even look like the same person in both photos? ———————————————— The human body can do incredible things, looking at the second photograph taken of me a few days after my surgery still shocks me now. I lost over 3 stone whilst I was in hospital for 4 weeks. My muscle had completely disappeared. When I got out of hospital, walking upstairs was difficult, even sleeping was painful, my bones aches when I slept, I had so many pillows to help that I was pretty much sleeping in a sat up position. ———————————————— Life can give you some hard challenges, which before happen you wouldn’t believe that you could get through it. But you do and are way stronger than you ever expected. ———————————————— #latania #strongwoman #mountainsarecalling #snowboardinstructor #strongissexy #travellingileostomy #myileostomyworld #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated #whatbag

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 55 likes
  • 4 comments

📍Longvic - France 🇫🇷 ———————————————— Throwback to our first destination on our roadtrip home this summer. Also our first experience with Airbnb. I am now a real lover of Airbnb, I would much rather stay in a quirky cool place, close to the centre, I don’t want a standard hotel room with hotel breakfast, finding somewhere to try a local delicacies, hot pastries and fancy coffees is what I want. ———————————————— Unfortunately Longvic was our learning curve in the Airbnb world, don’t go too far away when booking somewhere to stay: we were too far of a walk from Dijon, so when we went for a lovely meal in Dijon, I had to drive home. Research the place you are staying: there was nothing to do in Longvic, so we had to drive into Dijon. And finally check on what the set up of accommodation is: we were in a room in someone’s house, which was absolutely lovely and worked, but we couldn’t speak French and our host couldn’t speak English. Just little tips and hints that will help when booking, and haven’t failed me since. ———————————————— #longvic #airbnb #roadtrippin #lifeontheroad #rivertrails #travellingileostomy #myileostomyworld #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated #throwback

Lisa-Kate media on instagram
@lisakateostomate
  • 48 likes
  • 0 comments

Reading this it felt like it was wrote for me, I love this article worth a read @themightysite “If I’m having a good day and I want to document it through pictures and post it, I’m instantly looked at as a faker. Because how can someone have that much pain and still go out and have fun? If I’m undergoing a surgery, etc.,and I post a picture asking for positive thoughts, I’m looked at as an attention-seeker. How is that fair? All you’re seeing is a Facebook post. You don’t see me the 99 percent of the time. You don’t see me with bags under my eyes from the lack of sleep I’ve gotten. You don’t see me clinging to my stomach at 2:00 in the morning repeating over and over “please stop the pain, please stop it.” You don’t see me, you don’t know all I go through. Just because you can’t see my actual illness does not mean it’s not real. Because it is.” https://themighty.com/2017/09/endometriosis-not-apologizing-for-good-days/ #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself

MyCrohnsDiary media on instagram
@my_crohns_diary
  • 47 likes
  • 0 comments

As its getting a bit colder I needed new clothes for work 🙈 love this top as its got a slight dipped hem at the back and ties at the sleeves, also not too tight. #crohnsdisease #inflammatoryboweldisease #crohns #crohnsawareness #ileostomybag #ileostomy #ileostomyawareness #ileostomyfashion #ostomy #ostomyfashion #whatostomateswear #ootd #newclothes

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 36 likes
  • 1 comments

📍Plovdiv Old Town - Bulgaria 🇧🇬 ———————————————— I truly fell in love with Plovdiv, for anyone that is heading to Bulgaria I would definitely make this an addition to a trip, or even a special visit to Plovdiv. ———————————————— On the first day we arrived, as it was October, walking tours were down to 1 a day, and so we had the morning to explore ourselves. As much as I do love doing walking tours in all the cities I visit, I also love the feeling of getting lost somewhere new and not knowing what you are going to find. ———————————————— Although the walking tour finished at this Roman Theatre, we had found it ourselves in the morning, but this allowed us to be able to go inside and get a closer look. The steps to get down to the stage were pretty scary, very steep, but it was very easy to imagine this place hosting events. ———————————————— And as you can see from the umbrella, the rain didn’t stop us enjoying our time in Plovdiv. ———————————————— #plovdivoldtown #romantheatre #raindoesntstopus #learntodanceintherain #redjacketgoes #travellingileostomy #myileostomyworld #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 41 likes
  • 3 comments

📍La Tania - France 🇫🇷 ———————————————— Another countdown day, which is making me so grateful for everything that I am able to do in my life. This time next month I will be heading back to La Tania for the 9th time. I love this place so much, it now holds so many memories for me, as well as it being the place where I met my fiancé. ———————————————— We will be getting picked up from the airport and have a transfer to the resort, there for 6 nights. For this length of holiday I will “try” to pack light. Only taking a boardbag and hand luggage, and I will have my ski boots in my hand luggage too. ———————————————— Our accommodation is lush, I will share this when I arrive. And we are lucky enough to be in a catered chalet, evening meal will be cooked for us, and beer and alcohol is included. ———————————————— If you are thinking of a ski holiday and have never experienced it before. Having catered means you can come back from a hard days skiing or snowboarding, have some afternoon tea and cake, then enjoy a hot tub before food is served. Then straight to bed for another full day on the slopes. Even if you have been on many ski holidays and haven’t tried catered, give it a go, I would be surprised if you didn’t love it too. ———————————————— #latania #snowboardinstructor #cateredchalet #luckylady #mountainsarecalling #travellingileostomy #myileostomyworld #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated

Adventures Of Mum Mum And Jake media on instagram
@adventuresofmummumandjake
  • 49 likes
  • 16 comments

Free from dairy products in the supermarkets right now ready for Christmas. These are all gluten, wheat, dairy free. Also Organic, Vegetarian and Vegan. Jake isn’t allergic but can be intolerant and I have a best friend who’s little girl is allergic so being knowledgable about what is in our Christmas treats couldn’t be more important! This best part? They taste really lovely 😊 Heres what’s in the selection box: 1xChoccy Drops A small bag of drops made from a blend of cocoa, sugar and rice drink. 1x Mini Moo Santa A small sized bar in the shape of Santa made from a blend of cocoa, sugar and rice drink. 1x Chocolate Snowman A small sized bar in the shape of a snowman made from a blend of cocoa, sugar and rice drink. 1x Mini Moo Cheeky Orange Chocolate A small sized bar made from a blend of cocoa, sugar, rice drink and orange sugar pearls. 1x Mini Moo Minty Chocolate A small sized bar made from a blend of cocoa, sugar, rice drink and mint sugar pearls. Have you found some great tasting free from treats?

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 50 likes
  • 1 comments

📍Big White - Canada 🇨🇦 ———————————————— Only 8 more weeks until I get to spend another amazing 12 weeks waking up to incredible views and spend my days either skiing or snowboarding. ———————————————— In the distance there is an inversion. The clouds are lower than I am and it looks like I am in heaven. Well to me I actually am. I love this place, and it will be amazing to spend my 12 weeks her with my fiancé this year 💗 ———————————————— #bigwhite #inversion #snowboardinstructor #8weekcountdown #travellingileostomy #travellingstoma #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated

Kieran Steward media on instagram
@i_am_bag_man
  • 55 likes
  • 4 comments

Today is a new day, new bag, different shit x Have a beautiful day all xxx #ileostomyawareness

@vees.ileostomy
  • 230 likes
  • 29 comments

Day 3..🏥 side note- if you swipe right, you’ll see the drains. • Okay so i thought I would update you guys and let you know what’s going on. so for the last few i days I’ve been having horrible pain followed by feeling nauseous. So they did a CT and it showed a small bowel obstruction and a bunch of fluid in my stomach from my belly button down. Since they have no idea where the fluid is coming from, they want to wait on surgery and try the drains first. (Which is totally fine by me.) • But besides that, that’s all that’s really going on. They put the drains in today and for now I’m still NPO. If you guys have any questions ask away! I hope everyone having a good Tuesday. ••• #loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie

Anika media on instagram
@anilili
  • 126 likes
  • 2 comments

T B P r o b l e m s Today six years ago 🍂 Auch damals beim Studium hatte ich übrigens große Probleme wegen der Colitis... Ich hab aber versucht mir nichts anmerken zu lassen. Und ich hab versucht es zu vertuschen. Und ich hab mir damit noch mehr Probleme gemacht! Ich hab zb wenn ich daheim krank im Bett lag Bilder aus besseren Zeiten gepostet, damit nach außen der Schein gewahrt wird, dass alles gut, dass alles normal und wie immer is. Das hat mir viele Probleme eingebracht, denn natürlich sah es für Kommilitonen und Kollegen so aus, als wäre ich gar nich krank und hätte nur keine Lust auf’s Studium bzw. komm dann mit dummen Ausreden an und komm damit bei den Dozenten auch noch durch... Denn angesehen hat man es mir ja auch nich. Aber so is das, mit unsichtbaren Krankheiten.... . . . . . . . . . #study #student #colitisulcerosa #colitis #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisawareness #cu #uc #mc #ibd #ced #morbuschron #autoimmune #autoimmunedisease #autoimmuneillness #autoimmunewarrior #stoma #ileostomyawareness #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #illness #chronicallyill #chronicillness #chronicallysick #invisibleillness #invisibleillnessawareness #invisibleillnesses #invisibleillnesswarrior

Alltag mit Stoma media on instagram
@road_to_shambala
  • 46 likes
  • 2 comments

2 Monate nach der zweiten Operation: - Reiten in allen Gangarten ✔️ - Stall und Pferde machen ✔️ - Kino besucht ✔️ - Wellnesurlaub ✔️ - Essen gehen ✔️ - Messe besucht ✔️ - Schwimmen, alle Stile ✔️ - Leben genießen ✔️ Einfach ist es sicher nicht. Auch nicht immer angenehm, manchmal einfach zum verzweifeln, aber kämpfen lohnt sich auf jeden Fall jedes Mal wieder 😉 Und die nächste Operation packen mein Körper und ich auch noch 💪🏻 #colitisulcerosa #chrons #colitiswarrior #chronicillness #chronicpain #ileostomy #stoma #swim #schwimmen #ileostomyawareness #operation #recovery #genesung #fakeittillumakeit #afteroperation #wellness #cu

@letsgoherethereandanywhere
  • 49 likes
  • 0 comments

📍Sofia - Bulgaria 🇧🇬 —————————————————————— Present vs Past —————————————————————— Bulgaria was a long, long weekend at the very end of September this year. I was happy and healthy and had absolutely nothing to worry about whilst I was away. My bag never leaked, no stomach ache, no blockages. I enjoyed meals out, cocktails. We went on a walking tour and a food tour. We went to the Military Museum as seen in the image. Never did I get held back at all ———————————————————————— Now swipe ➡️ ———————————————————————— This was me at the end of October 2015, after having life saving surgery. I had lost so much weight that even these images are a shock to myself. Underneath the red plastic bag is a source of nutrition that I was been fed via, my stoma wasn’t yet working correctly, so I couldn’t eat. ———————————————————————— I had a tube up my nose and down my throat into my stomach. I had been allowed to eat when I shouldn’t. So I had to have my stomach aspirated every few hours. I struggled to sleep as I had lost so much weight that my bones literally hurt. My skin was dry, I hadn’t been able to have a real shower from my dressing and wounds. My hair was greasy, for the whole time I was in hospital I did my best to keep as clean as I could. But always felt dirty. The nurses where amazing. And my family and friends visited me every day. The road to recovery had started, and so far it was pretty hard.———————————————————————— But my smile still stays on - Queen ———————————————————————— Sometimes you have to look to the past to see how far you have come. I am a very happy and healthy 29 year old now, and my life couldn’t be any better. —————————————————————— #pastvspresent #looktothefuture #leavethepastbehindyou #sofiabulgaria #travellingileostomy #travellingstoma #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated #whatbag

Natalie media on instagram
@its_natalie
  • 52 likes
  • 6 comments

Not the worst view from the hospital in #oxford Day 4 post #ileostomy op and I am finally eating food (6 days of not eating and I’ll eat anything!) I’ve changed my bag myself and have been walking up and down the corridors like a weirdo. Anything to get home soon!

@lisakateostomate
  • 120 likes
  • 2 comments

Looking at this First photo does make me sad. I miss my scar and bag free tummy and I know It won’t look like that anymore. But I know I’ve been through so much and last night my partner did remind me that my bag and op saved my life. If I didn’t have that I wouldn’t be here, I wouldn’t be able to go out and do things. I know some days we all get down about how things used to be. But I’m forever grateful for my gastro and colorectal team for saving my life. I know I still have had a few bumps this year being a tough one and down the line my bag will be made permanent. But I know with all the love and support of family, friends and my partner I can get through it. Having my bag has given me a second chance at life, yes my tummy may not look perfect but I’m proud of my scars. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #aeriereal #bodyconfidence #loveyourself

Alex_UCF media on instagram
@alex_ulcerativecolitis_fighter
  • 108 likes
  • 6 comments

Wow! So there it is. Yesterday was Nov 11th which now will always have 2 meanings to me... 🙌 1. As a member of the Royal Air Force - I am proud to serve and use the day to remember and reflect. 2. It’s been exactly 1 YEAR of me having my ileostomy! 😬 I always wonder if they did the 2 minute silence during my operation? 😆 I’m sure you ostomates can all relate but how quickly has that gone?!??? 💪 Im now healthy, happy, back nursing full time in the military, training for Everest base camp and just living my life to the max!!! . Whatever you are feeling today, just know that this time next year, life may be completely different (in the best way possible.) . Thanks for all the support on my journey over the last year. My newest blog (link in bio) is all about my bag-aversary! . #ostomylife #ibdawareness #ulcerativecolitis #chronicillness #nocolonstillrollin #ileostomy #stoma #stomalife #stomabag #ileostomyawareness #ibd #surgery #positivevibes #positivity #armistice #surgery #recovery #health #inflammatoryboweldisease #blog #blogger #healthblog

#IBDSuperHeroes media on instagram
@ibdsuperheroes
  • 82 likes
  • 5 comments

@Regran_ed from @lisakateostomate - Life for someone with IBD like myself isn’t just about how it effects you physically. The mental side to it and how it can effect you on a day to day basis plays a big roll to so many of us. Some like me may not be able to work or go out and do everyday things and that can get me down I won’t lie. I miss being able to do stuff but my body is so important and when I need to rest I’ve to listen to it and not push myself or feel bad for things out of my control, the trauma of having surgeries and so many hospital admissions and check ups can get on top of you. It really isn’t easy and I find having this page and sharing my journey with you all therapeutic in some way. I’m not ashamed to say I do suffer badly with anxiety and panic attack’s I think it steamed from the beginning of my illness at such a young age and the fear of hospitals and just being sick. It’s hard to explain to someone who doesn’t have this illness how you feel or what’s going on. I vent here as it helps me, but I have my family, fellow ibd sufferers and my partner who also has got crohns too, that support network for me means more to me than anything in this whole world. Remember you’re never alone in this journey, whether you’re only newly diagnosed or someone who has this illness years. We all need someone to be there for us and someone we can open up to. As always my inbox is always open to anyone who ever needs to talk about anything IBD, ostomy or fistula related. I know I’m not a doctor but I can offer advice how things are for me and how I’ve dealt with it all. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness ##bodyconfidence #loveyourself

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 44 likes
  • 11 comments

📍Big White - Canada 🇨🇦 ———————————————— Snowboarding is my favourite thing to do, and in November 2016 I booked to do a course in Canada to become an instructor and make this a career. ———————————————— Read more about this on my blog, and I will be there again for 12 weeks from January 2019, to where I will be blogging about my experience whilst I am there. ———————————————— Before my surgery I wouldn’t have been able to do this. Instead of it holding me back, it has given me the freedom to change my life for the better ———————————————— ***photo not taken by me*** but it’s me in the centre*** #snowboardinstructor #snowboardinggirl #casisnowboardinstructor #newcareer #lifechanging #travellingileostomy #travellingstoma #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated

Jas Nagaishi media on instagram
@mycrazylifejourney
  • 12 likes
  • 0 comments

I haven’t been as active on here but recently, I started taking Benadryl whenever I felt like the area around my stoma would get super itchy. I have found that this is a lifesaver. On the downside, it knocks me out until 8 in the morning but hey, I get a goodnight of sleep. And another awesome thing is that my hair is feeling more fuller. And I can now make a small ponytail that actually feels like I have a full head of hair. #ileostomy #ileostomybag #ileostomylife #ileostomyawareness #ileostomygirl #lifeafterileostomy #nocolon #nocolonstillrollin #whatbag

@vees.ileostomy
  • 269 likes
  • 39 comments

🏥... • They’re admitting me guys. It’s not a bowel obstruction yet but I do have a lot of fluid collection going on, in the same spot I had a abscess. So they’re admitting me to keep and eye on it and make sure another abscess isn’t forming. • So far no NG tube. THANK GOD. However I’m NPO . I’ll do another update in the morning guys. Thank you so much for your sweet messages! It truly means the would to be and why I love this community so much.❤️ ••• #ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #loveyourstoma #chronicloveclub

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 45 likes
  • 9 comments

📍Cornwall - England 🏴󠁧󠁢󠁥󠁮󠁧󠁿 ————————————————— Whilst down in Cornwall, we hired a tandem bike and went along the camel trail, we stopped off to have a little wander, sitting down the take in this view of Padstow. ————————————————— Back in Bude, when it comes time to settle down and get some roots, I do think about how amazing a life it would be to raise a child by the beach. What more could you want in life? ————————————————— Thinking back to all the things I have been through, and how hard life can be at times, but it’s looking past that and making the most of life. All my scars are a journey of what I have been on. A sign of what I went through and what I have become because of it. ————————————————— I have such an amazing life, great family and friends around me, I travel as much as I can, play sports, and do all the things that I couldn’t before my surgery. ————————————————— #alwaysbegrateful #lovemylife #cornwall #lovebude #travellingileostomy #travellingstoma #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated #padstow

Lisa-Kate media on instagram
@lisakateostomate
  • 87 likes
  • 6 comments

#aboutlastnight, first time out in about a month, Date night with my man. Have to say I had an amazing night and felt great to get dressed up, it’s been a busy and exhausting few weeks with hospital stays and visits every week. But I felt “normal” for once and went out for a meal and forgot about all that for a few hours. My black off the shoulder top is old stock from @primark, animal print skirt is recent stock from @quizclothing, it’s high waisted and so comfy, not a bag in sight, red wedges are old stock from @primark. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself

Veronica.V media on instagram
@vees.ileostomy
  • 166 likes
  • 11 comments

Happy Friday guys! Also if you live in Michigan happy first snow fall of the year!😍❄️ • ⭐️Fun Facts Friday⭐️ • 1️⃣ I’m obsessed with @crocs 😍-I know they are so ugly and most people hate them! But I’m obsessed! I love my crocs and they are so comfy! And yes I have charms on them. 🍱🥑🌺 • 2️⃣ I’ve been loving traditional wings!🍗-This is so crazy because normally I hate eating traditional wings. But lately I’ve been ordering them every time I go to BDubs. • 3️⃣ My new favorite Netflix show is “The Chilling Adventures of Sabrina”🔮-This show is soooo good and sooo spooky! I’m obsessed! • 4️⃣ I love the snow.❄️-Okay so I’m pretty sure I’ve said this before but since it snowed today, I thought I would mention it again!! I truly love the snow and I’m so glad it’s finally snowing again.❤️ • 5️⃣ I cant wait to see the new Fanatic Beast and Where to find them” movie!😱-Okay so it doesn’t come out until the 16th but I’m so excited and I can’t wait!!! It looks so good.😍 • I hope you guys enjoyed these fun facts! Also please tell me a fact about yourself or any fact!! I’d love to know more about you guys!❤️ A little update I still do feel good. But Todd is working so I guess that’s a positive! I’m pretty sure it’s probably adhesion. Story of my life.🙃 ••• #ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #loveyourstoma #chronicillness

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 35 likes
  • 2 comments

📍Cornwall - England 🏴󠁧󠁢󠁥󠁮󠁧󠁿 ————————————— Tonight I will make the 6 hour drive down to Cornwall. A weekend is not even close to being long enough, it will always be better than nothing. We will be sure to have walks along the beach, drinks in the local pub and meeting up with friends. —————————————— The beaches are so beautiful, England has some incredible places, yet most of us seem to want to head further away to chase the sunshine. When it can be so much closer than we realise. —————————————— I am planning on having a chilled out weekend to update my blog and get it fully running. So keep an eye out for updates. —————————————— #cornwalllife #cornwallcoast #sandytoes #beachwalks #meandmypug #travellingileostomy #travellingstoma #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated

Lisa-Kate media on instagram
@lisakateostomate
  • 74 likes
  • 1 comments

Today’s #ostomyfashionfriday entry is sent into me by the stunning @chloemeade93. Chloe has recently just become an ostomate and can I just say I think she’s rocking this jumpsuit and looking gorgeous as ever. If I didn’t know Chloe personally I wouldn’t have known she had a bag. You can wear what ever you like and feel comfy in when you’ve an ostomy, as you can see Chloe looks great. So proud of you and thank you for sharing your photo😘😘jumpsuit is from @newlook loving the print as it’s so on trend right now. Link below if you want to buy one too. https://www.newlook.com/uk/womens/clothing/playsuits-jumpsuits/petite-brown-leopard-print-wrap-culotte-jumpsuit/p/599192429?comp=Browse #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #aeriereal #bodyconfidence #loveyourself

Didi Gordon media on instagram
@dix2inhi
  • 23 likes
  • 4 comments

At least I’m organizing #ileostomyawareness #ileostomylife #ocdproblems can’t wait till I can get rid of this!!!

Veronica.V media on instagram
@vees.ileostomy
  • 152 likes
  • 9 comments

Sometime all you need is dog cuddles.❤️ • So a little update guys...I’ve had a migraine and really horrible stomach pains off and on since Monday. Todd is working so for the most part I don’t think it’s anything serious. Im just having a lot of pain, nausea, and bloating.😩 I’m hoping things getting but if they don’t, I’m either going to see my family doctor the ER because I can’t handle both a migraine and this pain. • On the positive side my pup is been up my butt giving me extra cuddles and honestly it’s been helping a lot. I know she looks miserable but i promise she isn’t.🙄🤣 ••• #loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomates #ostomate #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #hiddenillness #invisvibleillness #girlwithguts #loveyourself #bodypositivity #positivevibes #countyourblessings #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #pitbulls #pitbullsofinstagram

Lisa-Kate media on instagram
@lisakateostomate
  • 49 likes
  • 10 comments

Food overload from my fav American diner, can anyone say pred monster 🤣🤣🙈🙈all of that food for little me and I loved every bite. Bacon cheese burger, cheese and garlic fries, garlic mushrooms with dip. Sensing a garlic theme here🐷🐷🐷#predlife #garliclover #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself

SpoonsUnited media on instagram
@spoonsunited
  • 9 likes
  • 0 comments

Went to the cinema last night, amazing movie and great night, but I'm suffering today. Late night, on top of not sleeping well and I'm exhausted #spoonieissues #spoonietired #uc #ulcerativecolitisawareness #ulcerativecolitisfighter #ileostomybag #ileostomyissues #ileostomyawareness #pleasesendenergy #spoonie

@letsgoherethereandanywhere
  • 52 likes
  • 4 comments

📍Rotterdam - Netherlands 🇳🇱 ——— I absolutely fell in love with staying on a boat. I loved the way we were softly rocked to sleep with the slight current. I loved the way the bed was fit into the curved from on the boat. I loved the portholes to see out onto the sun shining on the water. ——— I will also have extra love for this boat as my fiancé proposed to me whilst we were staying here. On our second evening. After an amazing taster menu at a Chinese restaurant recommended in the guide onboard. ——— It does amaze me that I have found that person who wants to spend the rest of his life with me, ileostomy and all. I always thought that no one could ever love someone with an ileostomy, and only being 26 when I had the surgery. ——— And yet we already have so many memories and have done so many things I could only have dreamt of before Illy came along. ——— #rotterdam #boatsandhoes #engagedlife #loverotterdam #truelove #travellingileostomy #travellingstoma #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 38 likes
  • 3 comments

📍Dijon - France 🇫🇷 ——— Usually when in a new place we do a free tour. Dijon has what’s called the owl trail. Lots of little metal arrow owls which are stuck to the floor for you to follow. We had so much fun following them.....but we didn’t have the book that goes with it, so didn’t learn that much about Dijon. It is a beautiful place though. ——— Luckily on my trip through Dijon that was my only worry. I have had my bag leak before, it does usually happen in the worst place possible. But all you can do is deal with it and move on. ——— As much as a leaking bag can be an awful, it makes it so much easier to clean up, attach a new one and continue with your day? ——— Pre surgery it was relentless, there would have been no way I could have done a roadtrip, or even a walking tour which I love so much. Travelling would have been completely impossible for me. ——— I am really trying to embrace the one thing I hate the most, but also the one thing that has allowed me an amazing life. ——— #ostomy #ostomybag #dijon #owltraildijon #travellingileostomy #travellingstoma #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated #nothingcanholdmeback

Josephine R.E Kock media on instagram
@josieandthesassystoma
  • 100 likes
  • 16 comments

I’ve been so fortunate to collaborate with the most awesome company @vanillablush that creates beautiful and supportive underwear/lingerie for people that have an ostomy bag it sits perfectly over my bag, and bonus it makes me feel very beautiful which sometimes can be hard with a bag. Jeg har været så heldig at få opstartet et super fedt samarbejde med firmaet @vanillablush, de laver det smukkeste og mest støttende lingeri til os med stomi poser, den sidder super dejligt over posen, uden at være for stram, og udover det føler jeg mig super smuk med den på, hvilket til tider kan være svært med en stomi! Mit håb er at få spredt kendskab om dette mærke, så i også kan prøve hvor fantastiske de er. #stoma #whatbag #whatostomateswear #ostomylife #colitis #stomi #lifeasanostomate #fighter #feelingbeautiful #vanillablush #supportive #dagensbillede #colitiswarrior #photooftheday #makeachange #whatsnormal #livetsomsyg #scarsarebeautiful #spreadawareness #kronisksyg #brydtabuet #stomiliv #ileostomi #ostomyfashion #follow #inspirational #keepyourheadup #spreadjoy #ileostomia #ileostomyawareness

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 41 likes
  • 8 comments

📍Bude - Cornwall 🏴󠁧󠁢󠁥󠁮󠁧󠁿 ——— I may only have one trip out of the country left this year. However, I do have a few weekend trips that I can look forward to. ——— This weekend is a 6 hour drive down to Bude in Cornwall to see family and friends. We will certainly be having beach walks with the dogs whilst down there. ——— The image is taken of the beach huts that line the beach and are next to the sea pool. Each different coloured door standing out next to the white of the walls. ——— Tonight I will be packed and getting myself prepared. I always carry my little “makeup” bag with supplies in my handbag. But when travelling away I always take extra in my luggage. ——— I sometimes find that clothes that I once loved and have worn plenty of times seem to show my bag more than I remember, whether that’s it sticking out, or visible through the fabric. Either way I always pack a few outfits to give me a choice then I can always find something that I feel good in no matter where I am ——— #lovebude #seapool #beachhuts #visitcornwall #travellingileostomy #travellingstoma #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated

Lisa-Kate media on instagram
@lisakateostomate
  • 62 likes
  • 2 comments

I know it’s been a while since I posted my #ootd still weak and wobbly but getting stronger each day. Home 2 weeks from hospital today, so I’m back off out to the hospital for blood tests and a check up as my levels of MG are still low so my team want to see me. Dress is a few years old from @primark black knee boots are @riverisland and worn with tan tights to keep warm. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #ibdlife #spoonie #ostomy #stomalife #getyourbellyout #ibdsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself

Ostomate and the City media on instagram
@ostomate_and_the_city
  • 29 likes
  • 9 comments

WHAT’S YOUR FAV AIR ODOR ELIMINATOR??? I still have this given to me by my hospital #ostomy nurse & have tried normal sprays as well. I’m obsessed with odor control y’all! Let me know what to try next! #ostomate #ostomylife #colostomylife #ileostomy #colostomy #baglife #ostomyawareness #colostomyawareness #ileostomyawareness

WWW.TYESTURGEON.COM media on instagram
@_hannahsturgeon_
  • 102 likes
  • 6 comments

3 weeks ago today this little bag gave me my life back. When I first got sick back in August I had looked up the possibility of ending up with a bag. I almost knew in my gut (pun intended 😁) that this was going to be the road I would go down. So when they said "You're having surgery... Pick the spot for your Ileostomy!"...I was scared, but ready. While there have been ups and downs of emotions...Moments of wanting to be embarrassed or ashamed...I can't help, but to be grateful. I can EAT again 🌮🍕🍟I can WALK further than just to the bathroom 🤗🚽 Simply being able to smile and laugh again has been the best of all 😃 I don't know what the future holds for me and my health. But I figured since this bag and I are gonna be hangin' out for a while. I might as well accessorize 🤗🎒👛👜👝🛍💞 ▪ ▪ ▪ ▪ #baglife #crohns #ileostomy #accessory #fashion #ostomate #hat #style #brunette #crohnswarrior #blessed #journey #adventure #traveler #horselover #noshame #godsgirl #fighter #crohnslife #yogapants #ostomylife #ulcerativecolitis #photographylover #foodie #recovery #fitness #ileostomyawareness #accessorize

Katie Klonowski media on instagram
@katieklon
  • 23 likes
  • 6 comments

Bag what bag 🤷🏼‍♀️ still get excited when I can buy ‘normal’ clothes and feel ‘normal #crohnscolitisuk #bagwhatbag #ileostomylife #ileostomyawareness

My Ileostomy World media on instagram
@letsgoherethereandanywhere
  • 53 likes
  • 1 comments

📍Dent Fell - Lake District 🏴󠁧󠁢󠁥󠁮󠁧󠁿 ——— It’s amazing what you can find when you aren’t looking. I came across this service entry through a forrest whilst climbing up Dent Fell. ——— This was just over half way on the Coast to Coast walk. A total of 192 miles, through amazing countryside, and interesting photographic opportunities on the way. ——— This was the first stage, and it is generally 13 stages. Although you can make some longer or shorter. My parents completed this walk over 2 weeks continuous walking. ——— #coasttocoast #dentfell #lakedistrict #forestry #justkeepwalking #travellingileostomy #travellingstoma #travelblogger #traveller #stomaawareness #notallwhowanderarelost #lovetotravel #girlswhotravel #travelphotography #herethereandanywhere #beautifulplaces #chronicallytravelling #itsoknottobeok #makememories #ileostomyawareness #ulcerativecolitis #invisibleillness #girlsvsglobe #wanderlust #livingmybestlife #culturetrip #baglady #thisisme #chronicallymotivated